How can I find a genetics professional in my area?
To find a genetics professional in your community, you may wish to ask your doctor for a referral. If you have health insurance, you can also contact your insurance company to find a medical geneticist or genetic counselor in your area who participates in your plan.
Several resources for locating a genetics professional in your community are available online:
The National Society of Genetic Counselors (NSGC) offers a searchable directory of genetic counselors in the United States and Canada. You can search by location, name, area of practice/specialization, and/or ZIP Code.
The American College of Medical Genetics and Genomics (ACMG) has a searchable database of medical genetics clinic services in the United States.
The Genetic and Rare Diseases Information Center, a service of the National Institutes of Health, provides a guide to finding specialists in particular genetic and rare conditions.
The National Cancer Institute provides a Cancer Genetics Services Directory, which lists professionals who provide services related to cancer genetics. You can search by type of cancer or syndrome, location, and/or provider name.
The Tuberous Sclerosis Alliance provides advice on finding and choosing a doctor. Although this advice is written for adults with tuberous sclerosis, much of it applies to people with any chronic health condition.