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Rare Disease Day 2014
Rare Disease Day will be observed on February 28, 2014.
Rare Disease Day was established as a day to bring awareness to rare diseases, which in the United States are defined as conditions that affect fewer than 200,000 people. Currently, a total of about 30 million Americans are affected by almost 7,000 rare diseases.
Patient advocacy organizations in the United States and around the world observe Rare Disease Day as an opportunity to bring recognition to rare diseases and to the people affected by them. The rarity of these diseases can make it difficult for affected individuals to receive an accurate diagnosis and proper care. The focus of Rare Disease Day 2014 is the many individuals involved in the care of people affected by rare diseases. Many affected individuals are supported by medical specialists and other health care workers, advocates, family members, and other caretakers. Rare Disease Day 2014 is an opportunity to recognize the valuable contributions of everyone who promotes better care for people with rare diseases.