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Rare Disease Day 2011
Rare Disease Day is celebrated on February 29, 2011
Rare Disease Day is observed as a day to bring awareness to rare diseases, which in the United States are defined as conditions that affect fewer than 200,000 people. Currently, about 30 million Americans affected by almost 7,000 rare diseases.
Rare Disease Day is celebrated not only in the United States, but by patient advocacy organizations around the world. Rare Disease Day is an opportunity to bring recognition to rare diseases and to the people affected by them. The rarity of these diseases makes it difficult for affected individuals to receive an accurate diagnosis and proper care. The focus of Rare Disease Day 2012 is solidarity among individuals within the rare disease community to focus on working together to promote the advancement of rare disease research and enhance the support network within the community.